Capone Stanley Reynolds, to give him his full name, has been my faithful, handsome and sweet-natured companion since 2007. He really is a lovely dog, a strong silent type, very self-contained, gentle, calm and, I believe, wise.
Sadly, he developed epilepsy around the age of five and a couple of years later was struck with severe arthritis which means for the last three years or so he hasn’t been able to walk with me as he used to. However, regular use of CBD oil has transformed his life and I think we will have several more years together before he goes to that neverending walk in the sky where he will be able to run and play as he did when he was younger.
He’s a cross between a Staffordshire Bull Terrier and a German Shorthaired Pointer – which is where he gets his gorgeous coat from, a mottled mixture of grey, black, white and a few touches of orange. I believe that, apart from his siblings, he is unique and he attracts a great deal of attention. People say he looks like a leopard and several times I have been offered large sums of money for him.
We have walked hundreds of miles together. He first came to live with me when I lived in Emsworth, Hampshire. We learned the pleasure of walking together around Chichester Harbour and I had an article about our adventures published in Country Walking magazine.
I had once before, in the late 70s, seen someone fall down on a zebra crossing while having an epileptic fit. Nothing prepares you though for when someone you love first endures a seizure. It is frightening and deeply distressing. I can only despair at what it must be like for a parent whose small child suffers so.
Quickly though, you become used to it. You have to, for your own sake and so that you can look after the one who is fitting. In fact, there’s not a lot you can do, except protect them from hurting themselves while thrashing about. Every seizure is different but for Capone they all start with the most intense rigidity, arched back, teeth clenched and violent shaking. Then, after a minute or so, he will appear to relax and his legs will start a frantic bicycling motion while he froths at the mouth and usually loses control of his bladder, weeing everywhere. Occasionally he will go back into the rigid phase but at some point, usually within three or four minutes, he will jump slightly as if he’s just woken up – and indeed he has. Then he wants to stand up, although he doesn’t have proper control of his legs and he will fall over or walk into the wall or furniture. For up to an hour afterwards he will be wide-eyed, panting crazily and usually ravenously hungry. Gradually he calms down, until at last he sleeps, exhausted.
Capone’s seizures come in clusters over a 36 to 48 hour period. To begin with it was about every three hours, so it’s utterly draining, all through the night, never more than an hour or two’s sleep before the next one starts. When at last it comes to an end, it takes three or four days for him to recover. It’s almost like he’s had a stroke and he seems stupid, off balance and doesn’t really seem to know where he is. Thankfully, he always has recovered, right back to normal again and a week later it’s all forgotten.
I can’t remember the exact sequence of events now but it was around this time that the story of Charlotte Figi became known, the remarkable effect of CBD oil on this small child with Dravet’s Syndrome, a severe form of paediatric epilepsy. It wasn’t long before I decided to try Capone on CBD.
His arthritis had also dramatically worsened by now. We went from walking five miles every day to the point where it was taking the same amount of time for him just to walk half a mile or so. Both I and my other dog, Carla, were frustrated and suffering from a lack of exercise. Eventually I had to make the heartbreaking decision to leave him at home and just Carla and I would go for a walk. With a lack of exercise he began to put on weight and it became a vicious circle. About three years ago it had reached the stage where he couldn’t walk more than about 20 yards and I feared I would have to make the toughest decision of all. In this state, when a cluster of seizures came along, he truly was a pathetic sight, my wonderful, beautiful dog and friend in so much distress and pain.
I tried various CBD products. I didn’t really know what I was doing and they didn’t seem to have much impact. But then, nothing did. The best the vet could offer was rectal tubes of diazepam, like a small toothpaste tube with a nozzle that you stick up his bum and squeeze. They had no impact at all. I have given him 30mg of diazepam while he was fitting (enough to lay me flat out for 24 hours) and it’s made absolutely no difference. But then neither did CBD. There was none of this immediate effect like you see on the many YouTube videos of children being dosed with CBD oil.
Gradually though the frequency and intensity of his seizures started to diminish. I had settled on using PlusCBD Gold oil. Two grams of this dissolved in olive or hempseed oil contains about 500mg of CBD and that would last for a month or so, giving him a dropper full every morning with his breakfast.
He was walking better. On a good day he could now manage a couple of hundred yards. In the summer he was able to do his very favourite thing and walk up the garden into full, unshaded sunlight and spend most of the day there sleeping on the lawn. The seizures seemed to have stopped.
Then, perhaps a year ago, I quadrupled his dose. I now use LoveHemp 20% oil which provides a full 2000mg of CBD. I dissolve this in olive or hempseed oil in a 50ml dropper bottle and he continues to get one dropper full every day.
In the past two years, Capone has had just one cluster of seizures. It took place over the same period but there were far fewer fits of much less intensity, perhaps seven or eight over 48 hours. He can walk a few hundred yards now. He’ll never be the vigorous, fast-running dog he once was but occasionally I take him for a slow walk now for half an hour or so. If he sees another dog he gets excited and gets up a rather ungainly and clumsy turn of pace – but it’s almost a run and he’s still Capone and I treasure every minute that we have together. CBD oil, or as it should be more accurately termed, low-THC whole plant cannabis extract, has saved his life.
Just four months younger than me, he was born in Cardiff in January 1958, 10 miles from where I was born in Newport, the previous September. We share the same three names: Peter John Reynolds. Clearly something of an eccentric but well respected, he is best known as the composer of the world’s shortest opera, ‘The Sands of Time’ (1993). It depicts a row that takes place during the boiling of an egg.
I can confirm that it is the only opera that I have listened to in full. Enjoy!
His obituary as published in The Times, 2nd November 2016
Peter Reynolds earned a place in Guinness World Records for The Sands of Time(1993), the world’s shortest opera. It lasts for three minutes, 34 seconds (no interval), about half the length of Darius Milhaud’s Deliverance of Theseus, which had held the record since 1928.
The piece is set in a suburban kitchen of the 1990s, as an egg is boiling (the length of the opera). Stan and Flo, husband and wife, are having an argument at breakfast when a knock at the door tells them that they have won the pools. Peace is restored as the egg is lifted out of the pan.
“It certainly has the influence of 19th-century Italian opera,” argued Reynolds, pointing out that his work included eight separate numbers. “Stan’s aria, ‘Down with the splash of cologne and deodorant spray’, was very much me doing early Verdi, the heroic tenor aria as in Il Trovatore. The patter song with its resonances of Gilbert and Sullivan is very quick.”
The Sands of Time, which has a libretto by Simon Rees, was conducted at its premiere at an outdoor shopping centre in Cardiff by Carlo Rizzi, the music director of Welsh National Opera. Reynolds later admitted that the work had been written in a hurry. “It took me an evening to write,” he said, adding: “I’m very proud to have used deodorant for the first time [in an opera]. It isn’t product placement. It’s simply facing reality in its harshest form.”
Later he would be embarrassed by the state of the work’s only copy. “I didn’t produce the neatest score in the world,” he said. “Twenty years on it’s still getting performances every year and each time I feel a bit more embarrassed about the old score.”
Peter John Reynolds was born in Cardiff in 1958. Almost as soon as he could walk he taught himself to play LPs and 78s on his parents’ 1954 radiogram. “I was enthusiastic, but none too careful and was often told off for playing 78s using an LP stylus,” he recalled.
He went to St Teilo’s school, studied music at University College, Cardiff, and was awarded a series of bursaries in the 1980s to attend composition classes at Dartington Summer School, with Morton Feldman, Peter Maxwell Davies and Gordon Crosse. In 1986 he was awarded the Michael Tippett award for composition, and the following year wrote his first large-scale commission, a work for chamber orchestra, that was performed at Dartington.
Over the following years Reynolds was an integral part of the vibrant Welsh music scene. He founded the PM Ensemble, major players in contemporary music at the end of the century; was artistic director of the Lower Machen Festival; wrote programme notes for more than 2,000 pieces of music; programmed concerts for St David’s Hall; set up a series of foyer concerts at Wales Millennium Centre; and, in 2009, published a history of the BBC National Orchestra of Wales.
In 1994 he joined the Royal Welsh College of Music and Drama, where he was friend, mentor and confidant to a wide range of students. He would caution them against wasting energy on large-scale composing, while encouraging vigorous discussion in the bar.
Reynolds’s music was characterised by stillness, simplicity, an occasional playfulness and a tendency to set unusual and quixotic texts. For example, Adieu to all Alluring Toys, a set of songs, took its title from the epitaph on an 18th-century child’s grave at a tiny country church in Breconshire. He was recently the recipient of a Creative Wales award, enabling him to explore the relationship between music, architecture and landscape.
He tended to compose in longhand rather than use computer software. “It slows me down and makes me consider more carefully what I write,” he said. “I remember that Morton Feldman used to say that copying out his music in different drafts brought him closer to the material.”
Friends recalled that he was often seen at his local farmers market, cooked a delicious tagine and enjoyed exploring cycle tracks around Cardiff on his bike. At the time of his death Reynolds, who never married, was working on a car-horn fanfare for the Vale of Glamorgan Festival, to be performed by vintage cars.
Peter Reynolds, composer, was born on January 12, 1958. He died suddenly on October 11, 2016, aged 58
Email to my MP, Sir Oliver Letwin, concerning the Investigatory Powers Bill
From: Peter Reynolds
Sent: 25 November 2016 15:01
To: Oliver Letwin
Subject: The Investigatory Powers Bill
Perhaps you can explain to me on what basis of reason, justice or liberty the following organisations will shortly have access at will to my (and your) internet browsing history?
This is an outrageous intrusion into my private life and completely unacceptable. I think it’s time we started a UK campaign for the right to bear arms. Every day it seems the government is becoming more and more of an oppressor. I reject this entirely and it does not have my consent.
Metropolitan Police Service
City of London Police
Police forces maintained under section 2 of the Police Act 1996
Police Service of Scotland
Police Service of Northern Ireland
British Transport Police
Ministry of Defence Police
Royal Navy Police
Royal Military Police
Royal Air Force Police
Secret Intelligence Service
Ministry of Defence
Department of Health
Ministry of Justice
National Crime Agency
HM Revenue & Customs
Department for Transport
Department for Work and Pensions
NHS trusts and foundation trusts in England that provide ambulance services
Common Services Agency for the Scottish Health Service
Competition and Markets Authority
Criminal Cases Review Commission
Department for Communities in Northern Ireland
Department for the Economy in Northern Ireland
Department of Justice in Northern Ireland
Financial Conduct Authority
Fire and rescue authorities under the Fire and Rescue Services Act 2004
Food Standards Agency
Food Standards Scotland
Gangmasters and Labour Abuse Authority
Health and Safety Executive
Independent Police Complaints Commissioner
NHS Business Services Authority
Northern Ireland Ambulance Service Health and Social Care Trust
Northern Ireland Fire and Rescue Service Board
Northern Ireland Health and Social Care Regional Business Services Organisation
Office of Communications
Office of the Police Ombudsman for Northern Ireland
Police Investigations and Review Commissioner
Scottish Ambulance Service Board
Scottish Criminal Cases Review Commission
Serious Fraud Office
Welsh Ambulance Services National Health Service Trust
Seriously, how can any MP with any integrity or honour vote for such Soviet-style government snooping?
Q. To ask the Secretary of State for Health, whether (a) his Department and (b) the Medicine and Healthcare Products Regulatory Agency has reviewed the latest evidence, including evidence on different regulatory approaches in other jurisdictions, for the use of medical cannabis.
A. The Medicines and Healthcare products Regulatory Agency (MHRA) reviews evidence submitted by a company seeking a marketing authorisation for a medicinal product in the United Kingdom. One product containing extracts of cannabis, Sativex, has been licensed as a medicinal product by the MHRA. However, no such application has been received in respect of herbal cannabis, and therefore the MHRA has undertaken no review of the evidence for its medicinal use. Outwith the MHRA licensing process, the Department has not conducted or commissioned a review of herbal cannabis or its regulation in other jurisdictions.
This is the classic breakfast for me. It’s essential to serve it with HP sauce, genuine HP sauce (I know of no acceptable own brand substitutes).
Split, season and bake large tomatoes at about 150 C for about 20 mins. It has to be smoked bacon for me, fried until it just starts to go crispy in some places. Serve on thick, buttered, granary toast.
Tip. You don’t get what you pay for with bacon, particularly not in supermarkets. Those expensive, flat trays where six rashers of bacon are artfully displayed alongside various logos, brands and quality claims are mainly a rip off. A proper butcher is of course best and sliced thickly but I use Sainsbury’s value brand, smoked back bacon. It’s excellent value and very tasty.